Where to start when you don't know where to start: Involving the public in fundamental biomedical science research

We know that involving the public in fundamental biomedical research delivers benefits ­– including building public trust in science, empowering consumers, and increasing the quality and translatability of research. There’s also growing recognition that the public should play an active role in the decisions that affect their health.

However, we also recognise that biomedical research scientists face unique challenges when involving the public. For example, researchers often feel apprehensive and uncertain about how to involve the public and may fear it’s yet another imposition on an already heightened workload. There are also few resources and practical directions available to show how researchers can best do this.

The following guide aims to address this gap. It includes practical information and tips for fundamental biomedical researchers who want to develop meaningful partnerships when involving the public.

Contents:

1. Challenges of public involvement in fundamental biomedical research

2. Benefits of public involvement in fundamental biomedical research

3. Involving the public meaningfully in fundamental biomedical research: Key considerations and approaches

4. Methods to engage and involve the public in your research

5. Case studies

i. Methods case studies

ii. Developing potential partnerships case study

6. Summary of tips for positive long-term collaboration with the public

7. Recommendations

8. Resources