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"I’ve never been a yes person": Decision-making participation and self-conceptualization after severe traumatic brain injury

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posted on 2023-03-30, 03:44 authored by Lucy KnoxLucy Knox, Jacinta DouglasJacinta Douglas, Christine BigbyChristine Bigby

Purpose: Although adults who sustain a severe traumatic brain injury (TBI) require support to make decisions in their lives, little is known about their experience of this process. The aim of this study was to explore how participation in decision making contributes to self-conceptualization in adults with severe TBI. Method: We used constructivist grounded theory methods. Data included 20 in-depth interviews with adults with severe TBI. Through a process of constant comparison, analysis involved open and focused coding until clear categories emerged and data saturation was achieved. Results: Self-conceptualization emerged as a complex and multifaceted process, as individuals with TBI aimed to reestablish a sense of autonomy. We describe a recursive relationship in which decision-making participation assists the dynamic construction of self, and self-concept contributes to the experience of making decisions. The role of an individual’s social support network in acting as a bridge between participation and self-conceptualization is presented. Conclusions: Findings emphasize that contributing to decisions about one’s own goals across a range of life areas can reinforce a positive self-concept. It is vital that supporters understand that participation in decision making provides a pathway to conceptualizing self and aim to maximize the person’s participation in the decision-making process.

Funding

This research was supported by a University postgraduate scholarship and Victorian Brain Injury Recovery Association & East Kew Branch of the Community Bendigo Bank Research Scholarship awarded to the first author.

History

Publication Date

2017-10-01

Journal

Disability and Rehabilitation

Volume

39

Issue

22

Pagination

11p. (p. 2250-2260)

Publisher

Taylor & Francis

ISSN

0963-8288

Rights Statement

© 2016 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.

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