La Trobe
I used to call him a non decision maker I never do that anymore parental reflections about training to support decision making of their adult.pdf (2.01 MB)
Download file

"I used to call him a non-decision-maker-I never do that anymore": parental reflections about training to support decision-making of their adult offspring with intellectual disabilities

Download (2.01 MB)
journal contribution
posted on 21.09.2021, 23:26 by Christine BigbyChristine Bigby, Jacinta DouglasJacinta Douglas, Elizabeth SmithElizabeth Smith, Terry Carney, Shih-Ning Then, Ilan Wiesel
ABSTRACT
Purpose: A rights perspective proposes supported decision-making as an alternative to substitute decision-making. However, evidence about supported decision-making practice is limited. Our aim was to build evidence about building the capacity of decision supporters.
Methods: Eighteen parents of people with intellectual disabilities were trained in decision support using
the La Trobe Support for Decision-making Practice Framework. Data from repeated semi-structured interviews and mentoring sessions were used to capture parental reflections on the value of training.
Results: The training acted as a catalyst for parent self-reflection and the Framework prompted them to adopt a more deliberative approach to supporting decision-making. Some parents perceived increased confidence of their adult offspring in expressing preferences resulting from their own changed approach.
Conclusions: This study demonstrates the efficacy of this Framework and evidence-based training in building the capacity of parental decision supporters to be consistent with the rights paradigm.

History

Publication Date

23/08/2021

Journal

DISABILITY AND REHABILITATION

Pagination

9p.

Publisher

TAYLOR & FRANCIS LTD

ISSN

0963-8288

Rights Statement

The Author reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.