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Writing the script. The overt and hidden contradictions of supporters' work in independent self-advocacy groups

Version 2 2020-11-05, 23:42
Version 1 2020-11-05, 23:36
journal contribution
posted on 2020-11-05, 23:42 authored by Sian AndersonSian Anderson, Christine BigbyChristine Bigby
© 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. Background: The role of support workers in self-advocacy groups is complex. The lack of transparency about who controls the agenda within groups is problematised by commentators but the evidence is limited about how supporters act, exercise power and are regarded by self-advocates. Aim: This study investigated the work of supporters in independent self-advocacy groups and how their work was understood by members. Method: Grounded theory methodology was used. Semi-structured interviews were conducted with 25 members of 6 independent self-advocacy groups, in Australia and the UK, and 10 supporters. Results: Supporters had three roles: supporting empowerment, managing operations, and leading strategic planning. They exercised power, controlling many group activities, but did so in ways that enabled groups to flourish, and scaffolded members’ sense of control. Conclusion: Supporters shaped groups, developing and resourcing them while promoting empowerment and enabling self-advocates to perceive partnerships; regarding supporters work as complementary to their own.


Funding for this research was received from the Australian Research Council.

Australian Research Council


Publication Date



Journal of Intellectual and Developmental Disability








Taylor & Francis



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