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The temporalities of supported decision making by people with cognitive disability

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Version 1 2020-10-13, 23:28
journal contribution
posted on 2022-10-24, 05:57 authored by Wiesel Ilan, Elizabeth SmithElizabeth Smith, Christine BigbyChristine Bigby, Then Shih-Ning, Jacinta DouglasJacinta Douglas, Carney Terry

In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities are supported to make decisions that reflect as much as possible their ‘will, preferences and rights’. In this paper we examine how geo- graphical thinking about temporalities might illuminate some of the legal, ethical and practical complexities of supported decision- making. The paper draws on qualitative data from interviews with people with intellectual disabilities or acquired brain injury, and those who support them in making decisions. We examine how temporal scales and boundaries shape the determination of deci- sion-making capacity; how decision-makers’ ‘will and preferences’ are interpreted by supporters; and how the labour of support for decision-making is organised. We argue that further geographical engagement with supported decision-making can help significantly advance this important disability rights agenda.

Funding

ARC Linkage Grant

History

Publication Date

2022-09-02

Journal

Social & Cultural Geography

Volume

23

Issue

7

Pagination

18p. (p.934-952)

Publisher

Taylor and Francis

ISSN

1470-1197

Rights Statement

© 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any med-ium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.

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