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Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families

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posted on 2022-09-05, 06:54 authored by T Ownsworth, K Lion, UM Sansom-Daly, Kerryn PikeKerryn Pike, ES Koh, GKB Halkett, MB Pinkham, RJ Chan, HM Dhillon
Objectives: This study aimed to scope the psychological support practices of Australian health professionals providing supportive care to adults with primary brain tumor. Method: Health professionals from multidisciplinary organizations and cancer support services completed an online survey focused on psychological support for people with brain tumor (PwBT) and family members, and perceived barriers or gaps in support provision. Results: 107 professionals, mainly from psychology (45%), nursing (20%), and social work (10%) backgrounds, completed the survey. Scope of practice differed according to discipline, with psychologists and nurses most likely to screen for psychological distress (71%–76%), and psychologists more typically providing at least one psychological support session (78%). Psychologists were more likely to screen for cognitive impairment (31%), whereas nurses and social workers more commonly provided family-based support (62%–73%). Psychological support was more frequently provided in the long-term management phase (78%) than early post-diagnosis/treatment (45%). System-level barriers to accessing psychological support were most frequently identified, which included limited resources and funding, insufficient staff time, lengthy waitlists and costs, poor service coordination, and lack of staff with brain tumor-specific training. Conclusions: The provision of psychological support for PwBT varies according to discipline, setting and management phase. Further research on different models of psychosocial care is needed to inform strategies to address organizational and policy factors impacting professionals' scope of practice.

Funding

Medical Research Future Fund, 2019 Brain Cancer Survivorship, Grant/Award Number: MRFBC000016

History

Publication Date

2022-08-01

Journal

Psycho-Oncology

Volume

31

Issue

8

Pagination

9p. (p. 1313-1321)

Publisher

John Wiley & Sons Ltd.

ISSN

1057-9249

Rights Statement

This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2022 The Authors.

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