Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services
journal contributionposted on 13.11.2020, 03:12 by Christine BigbyChristine Bigby, Mary WhitesideMary Whiteside, Jacinta DouglasJacinta Douglas
© 2017 The Author(s).
Published by Informa UK Limited, trading as Taylor & Francis Group.
Background: Supporting people with intellectual disability to make decisions is an important issue for policy implementation yet there is little evidence about the practice of providing support. Method: This study aimed to understand the experiences of family members and disability support workers in providing support to adults with intellectual disability in Victoria, Australia. Twenty-three people drawn from these two groups participated in individual or focus group interviews. Results: Three major themes emerged from inductive thematic analysis: their ideas about decision support, approaches to support, and challenges they faced. Overall these revolved around juggling rights, practicalities, and risks Conclusions: This study identified some of the challenges and practical strategies for providing decision support that can be used to inform practice and capacity building resources for supporters.
JournalJournal of Intellectual & Developmental Disability
Pagination14p. (p. 396-409)
PublisherTaylor and Francis
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Social SciencesScience & TechnologyLife Sciences & BiomedicineEducation, SpecialRehabilitationEducation & Educational ResearchSupported decision makingadults with intellectual disabilityperspectives of supporters and family memberssupport for decision makingcognitive disabilityQUALITY-OF-LIFESELF-DETERMINATIONCOGNITIVE DISABILITYSOCIAL-WORKPEOPLECHOICEPARTICIPATIONEXPERIENCESCAREAUTONOMY