La Trobe
2018 Bigby et al JIDDProviding support for decision making to adults with intellectual disability Perspectives of family members and workers in disability support services.pdf (1.6 MB)
Download file

Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services

Download (1.6 MB)
journal contribution
posted on 13.11.2020, 03:12 authored by Christine BigbyChristine Bigby, Mary WhitesideMary Whiteside, Jacinta DouglasJacinta Douglas
© 2017 The Author(s).

Published by Informa UK Limited, trading as Taylor & Francis Group.

Background: Supporting people with intellectual disability to make decisions is an important issue for policy implementation yet there is little evidence about the practice of providing support. Method: This study aimed to understand the experiences of family members and disability support workers in providing support to adults with intellectual disability in Victoria, Australia. Twenty-three people drawn from these two groups participated in individual or focus group interviews. Results: Three major themes emerged from inductive thematic analysis: their ideas about decision support, approaches to support, and challenges they faced. Overall these revolved around juggling rights, practicalities, and risks Conclusions: This study identified some of the challenges and practical strategies for providing decision support that can be used to inform practice and capacity building resources for supporters.


Publication Date



Journal of Intellectual & Developmental Disability






14p. (p. 396-409)


Taylor and Francis



Rights Statement

The Author reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.