Practice, governance, and culture characteristics of lived experience organisations, and evidence of efficacy: A scoping review protocol

Opie, Jessica; Vuong, A; Macafee, A; Khalil, Hanan; Pearce, Natalie; Jayakody, E; Maylea, Chris; McIntosh, Jennifer

doi:10.26181/23912913.v1

Practice, governance, and culture characteristics of lived experience organisations, and evidence of efficacy: A scoping review protocol

journal contribution

posted on 2023-08-17, 00:03 authored by Jessica OpieJessica Opie, A Vuong, A Macafee, Hanan KhalilHanan Khalil, Natalie PearceNatalie Pearce, E Jayakody, Chris MayleaChris Maylea, Jennifer McIntoshJennifer McIntosh

Background: Mental health policy and service design is increasingly recognizing the importance of the lived experience voice and its inclusion in all aspects of work. Effective inclusion requires a deeper understanding of how best to support lived experience workforce and community members to meaningfully participate in the system. Objectives: This scoping review aims to identify key features of organizational practice and governance that facilitate the safe inclusion of lived experience in decision-making and practice within mental health sector contexts. Specifically, the review focuses on mental health organizations devoted to lived experience advocacy or peer support or those in which lived experience membership (paid or voluntary) is central to advocacy and peer support operations. Methods: This review protocol was prepared with the Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols and registered with the Open Science Framework. The review will be guided by the Joanna Briggs Institute methodology framework and is being conducted by a multidisciplinary team including lived experience research fellows. It will include published and grey literature, including government reports, organizational online documents, and theses. Included studies will be identified through comprehensive searches of five databases: PsycINFO (Ovid), CINAHL (EBSCO), EMBASE (Ovid), MEDLINE (Ovid), and ProQuest Central. Studies published in English from 2000 onwards will be included. Data extraction will be guided by pre-determined extraction instruments. Results will be presented in a Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews flow chart. Results will be presented in tabular form and narratively synthesized. The planned commencement and completion dates for this review were July 1, 2022 and April 1, 2023. Discussion: It is anticipated that this scoping review will map the current evidence base underpinning organizational practices in which lived experience workers are involved, specifically in the mental health system. It will also inform future mental health policy and research.

Funding

This scoping review is conducted with funding from the Victorian Department of Health and the Victorian Mental Illness Awareness Council (VMIAC). VMIAC lived experience staff had and will have a role in study design, data collection and analysis, decision to publish, and preparation of the manuscript. This collaboration was formed in order to mentoring a lived experience researcher officer who is based at VMIAC.

History

Publication Date

2023-05-01

Journal

PLoS ONE

Volume

18

Issue

5

Article Number

e0283178

Pagination

9p.

Publisher

PLOS

ISSN

1932-6203

Rights Statement

© 2023 Opie et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.