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Parkinson's disease caregiver strain in Singapore

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journal contribution
posted on 02.02.2021, 04:10 by SB Tan, AF Williams, EK Tan, Richard ClarkRichard Clark, Meg MorrisMeg Morris
© Copyright © 2020 Tan, Williams, Tan, Clark and Morris. Background: Caregiver strain is recognized globally with Parkinson's disease (PD). Comparatively little is understood about caregiver burden and strain in Asia. Objective: To investigate caregiver strain for families living with PD in Singapore, in light of international data. Methods: Ninety-four caregivers were recruited via people living with idiopathic PD in Singapore. Caregiver strain was assessed using the Zarit Burden Interview (ZBI); health status was assessing using the Cumulative Illness Rating Scale for Geriatrics (CIRS-G). PD disability measures were the Unified Parkinson's Disease Rating Scale (UPDRS) and modified Hoehn and Yahr (1967) Scale. Results: Primary caregivers of people living with PD in Singapore were mostly cohabiting spouses, partners or offspring. Around half employed foreign domestic helpers. Mean caregiving duration was 5.9 years with an average of eight hours per day spent in caregiving roles. Most care providers were comparatively healthy. Caregivers reported significant levels of strain which increased with greater level of disability (r = 0.36, n = 94, p < 0.001). Associations were significant between caregiver strain and scores on the UPDRS mentation, behavior, and mood subscales [r = 0.46, n = 94, p < 0.001, 95% CI (0.28, 0.60)]. High scores on the UPDRS activities of daily living subscale were associated with caregiver strain [r = 0.50, n = 94, p < 0.001, CI (0.33, 0.64)]. Conclusion: Most caregivers in this Singapore sample reported high levels of strain, despite comparatively good physical function. Caregiver strain in PD spans geopolitical and cultural boundaries and correlates with disease severity. These results support the need for better early recognition, education, and support for caregivers of people living with PD.

Funding

We acknowledge the financial support of the Singapore General Hospital Research Fund-Quality of life and coping for caregivers of people with Parkinson's disease (SRF#143/08); 2008, Singapore General Hospital. This data was collected when S-BT was a PhD student at The University of Melbourne, supervised by Prof Williams.

History

Publication Date

01/01/2020

Journal

Frontiers in Neurology

Volume

11

Article Number

455

Pagination

10p. (p. 1-10)

Publisher

Frontiers Media

ISSN

1664-2295

Rights Statement

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