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Improving access to cancer information and supportive care services: A systematic review of mechanisms applied to link people with cancer to psychosocial supportive care services

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posted on 2025-12-11, 00:04 authored by Victoria M. White, N Pejoski, E Vella, Gemma SkaczkowskiGemma Skaczkowski, A Ugalde, Eva Yuen, P Livingston, Carlene Wilson
<p dir="ltr">Objective: Previous research has described the low uptake of psychosocial support services in people living with cancer. While characteristics of individuals using services have been examined, mechanisms applied to link individuals to support services are less frequently considered. This review aims to identify the mechanisms used to link people with cancer to support services and assess their impact. </p><p dir="ltr">Methods: Systematic searches of Pubmed, CINAHL, EMBASE and PsycINFO were conducted up to May 2020. Studies reporting service use associated with mechanisms to link adults with cancer to support services targeting emotional, informational, practical or social support needs were eligible. Eligible study designs included controlled trials, pre-post designs and observational studies. Study quality was assessed and a narrative synthesis of findings undertaken. </p><p dir="ltr">Results: A total of 10 papers (from 8,037 unique titles) were eligible. Testing the feasibility of the linkage mechanism was the primary aim in five (50%) studies. Three linkage mechanisms were identified: (a) outreach from the support service; (b) clinician recommendation/referral; (c) mailed invitation. Outreach was the most successful in connecting people with cancer to services (52%–90% use); clinician recommendation/referral was least successful (3%–28%). The impact of different linkage mechanisms for different demographic groups was not assessed. </p><p dir="ltr">Conclusions: Outreach from services shows the most potential for increasing access to support services. However, the limited number of studies and limitations in the types of support services people with cancer were linked to, demonstrated the need for further work in this area. Identifying mechanisms that are effective for underserved, high-needs patient groups is also needed.</p>

Funding

Funding for this work was through the Optimising the engagement of Culturally and Linguistically Diverse cancer patients and their families with supportive care designed to improve wellbeing project, a Cancer Australia Supporting people with cancer Grant initiative, funded by the Australian Government.

History

Publication Date

2021-10-01

Journal

Psycho Oncology

Volume

30

Issue

10

Pagination

23p. (p. 1603-1625)

Publisher

Wiley

ISSN

1057-9249

Rights Statement

© 2021 John Wiley & Sons Ltd. This is the peer reviewed version of the following article: White VM, et al (2021). Improving access to cancer information and supportive care services: A systematic review of mechanisms applied to link people with cancer to psychosocial supportive care services. Psycho-Oncology, 30(10), 1603-1625, which has been published in final form at http://doi.org/10.1002/pon.5744. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited.

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