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Establishing Identity: How Direct-to-Consumer Genetic Testing Challenges the Assumption of Donor Anonymity

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journal contribution
posted on 2025-12-16, 05:43 authored by Fiona Darroch, Ian SmithIan Smith
The rise of direct-to-consumer genetic testing is challenging the rules and expectations of the fertility industry concerning donor anonymity. While ethicists debate whose rights should prevail, many donor conceived people, recipient parents and donors are currently sharing their genetic information, along with methods to identify genetic links, in vast online communities, invalidating donor anonymity and providing a platform for those who advocate globally for legislative change to support donor-linking practices. This article looks at why it is important to access this information in relation to identity and kinship formation and how the Family Court Community can apply this knowledge in order to achieve better outcomes for children and families.<p></p>

History

Publication Date

2021-01-01

Journal

Family Court Review

Volume

59

Issue

1

Pagination

(p. 103-120)

Publisher

Wiley

ISSN

1531-2445

Rights Statement

© 2021 Association of Family and Conciliation Courts This is the peer reviewed version of the following article: Darroch F & Smith I (2021). Establishing Identity: How Direct-to-Consumer Genetic Testing Challenges the Assumption of Donor Anonymity. Family Court Review, 59(1), 103-120, which has been published in final form at http://doi.org/10.1111/fcre.12553. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited.