2018 Douglas Bigby SDM framework Dis and Rehab.pdf (1.24 MB)
Development of an Evidence-Based Practice Framework to Guide Decision Making Support for People with Cognitive Impairment due to Acquired Brain Injury or Intellectual Disability
journal contribution
posted on 2020-11-13, 03:02 authored by Jacinta DouglasJacinta Douglas, Christine BigbyChristine Bigby© 2018, © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
Purpose: At least 5% of people in Australia and the USA have cognitive impairment and require support for decision-making. This paper details a research program whereby an evidence-based Support for Decision Making Practice Framework has been developed for those who support people with cognitive disabilities to make their own decisions across life domains. Methods: The La Trobe framework was derived from a research program modeled on the Medical Research Council four-phase approach to development and evaluation of complex interventions. We completed phase one (development) by: (1) systematically reviewing peer-reviewed literature; and (2) undertaking qualitative exploration of the experience of support for decision-making from the perspectives of people with cognitive disabilities and their supporters through seven grounded theory studies. Results of phase two (feasibility and piloting) involving direct support workers and health professionals supported phase three (evaluation) and four (implementation), currently underway. Results: The framework outlines the steps, principles, and strategies involved in support for decision-making. It focuses on understanding the will and preferences of people with cognitive disabilities and guides those who provide support including families, support workers, guardians, and health professionals. Conclusions: This framework applies across diverse contemporary contexts and is the first evidence-based guide to support for decision-making.Implications for Rehabilitation Support for decision-making is essential to maximise the participation of people with cognitive disability in decisions about their lives. Research has shown that support for decision making is a complex multifaceted process comprising multiple overlapping steps, delivered through individually tailored strategies and informed by practice principles. The La Trobe practice framework provides an evidence-based guide for engaging in effective support for decision-making with people with cognitive disability.
Funding
This work was supported by New South Wales Family and Community Services.
History
Publication Date
2018-11-18Journal
Disability and RehabilitationVolume
42Issue
3Pagination
8p.Publisher
Taylor and FrancisISSN
0963-8288Rights Statement
The Author reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.Publisher DOI
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