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Countering 'the moral science of biopolitics': Understanding hepatitis C treatment 'non-compliance' in the antiviral era

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posted on 2024-04-04, 00:20 authored by David MooreDavid Moore, Suzanne FraserSuzanne Fraser, Adrian FarrugiaAdrian Farrugia, Renae FomiattiRenae Fomiatti, Michael Edwards, Elizabeth Birbilis, Carla TreloarCarla Treloar
Although new hepatitis C treatments are a vast improvement on older, interferon-based regimens, there are those who have not taken up treatment, as well as those who have begun but not completed treatment. In this article, we analyse 50 interviews conducted for an Australian research project on treatment uptake. We draw on Berlant’s (2007, Critical Inquiry, 33) work on ‘slow death’ to analyse so-called ‘non-compliant’ cases, that is, those who begin but do not complete treatment or who do not take antiviral treatment as directed. Approached from a biomedical perspective, such activity does not align with the neoliberal values of progress, self-improvement and rational accumulation that pervade health discourses. However, we argue that it is more illuminating to understand them as cases in which sovereignty and agency are neither simplistically individualised nor denied, and where ‘modes of incoherence, distractedness, and habituation’ are understood to co-exist alongside ‘deliberate and deliberative activity […] in the reproduction of predictable life’ (Berlant, 2007, p. 754). The analysed accounts highlight multiple direct and indirect forces of attrition and powerfully demonstrate the socially produced character of agency, a capacity that takes shape through the constraining and exhausting dynamics of life in conditions of significant disadvantage.

Funding

The research reported in this article was funded by the Australian Research Council (DP200100075).

History

Publication Date

2024-03-01

Journal

Sociology of Health & Illness

Volume

46

Issue

3

Pagination

19p. (p. 399-417)

Publisher

Wiley

ISSN

0141-9889

Rights Statement

© 2023 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for the Sociology of Health & Illness. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

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