Conundrums of supported living: The experiences of people with intellectual disability
journal contributionposted on 2020-11-11, 02:02 authored by Christine BigbyChristine Bigby, Emma BouldEmma Bould, Julie Beadle-Brown
© 2016 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. Background Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported living. By investigating service user experiences of supported living this study aimed to identify how the potential of supported living might be better realised. Method Thirty-four people with intellectual disability participated in 7 focus group interviews and 6 people in an individual interview. Data were analysed using grounded theory methods. Results Although participants experienced greater choice and control over their everyday lives, they did not feel they controlled the way support was provided and experienced restrictions on lifestyle associated with low income. Despite their use of community places and varied social connections to family, friends, and acquaintances, most experienced loneliness. Conclusions If the potential of supported living is to be realised, shortcomings of support arrangements must be addressed by, for example, greater consistency of support worker skills, consumer control over recruitment and rostering, and more skilled support to build friendships and manage difficult relationships.
This study was funded with assistance from a funding grant offered under the National Disability Research and Development Agenda, jointly implemented by disability representatives from Commonwealth, state, and territory governments. However, the information and views contained in this research are not intended as a statement of Australian Government or any jurisdictional policy and do not necessarily, or at all, reflect the views held by the Australian Government or jurisdictional government departments.
National Disability Research and Development Agenda
JournalJournal of Intellectual and Developmental Disability
Pagination11p. (p. 309-319)
PublisherTaylor and Francis
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Social SciencesScience & TechnologyLife Sciences & BiomedicineEducation, SpecialRehabilitationEducation & Educational Researchintellectual disabilitysupported livingpolicyhousing and supportQUALITY-OF-LIFEDEVELOPMENTAL-DISABILITIESGROUP HOMESRESIDENTIAL SERVICESADULTSCOSTSACCOMMODATIONARRANGEMENTSAUSTRALIAOUTCOMES