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Bridging the digital divide for people with aphasia: a study protocol for codesigning web accessibility tools and guidelines

journal contribution
posted on 2025-09-03, 04:49 authored by Jennifer Lee, Peter Worthy, Ryan Deslandes, Bridget Burton, David A Copland, Phill Jamieson, Kim Barron, Leanne Togher, Kirstine Shrubsole, Ciara ShigginsCiara Shiggins, Jessica Campbell, Anne HillAnne Hill, Janet Wiles, S Alexander Haslam, Sarah J Wallace
<p dir="ltr">INTRODUCTION: Aphasia is a language impairment that affects one-third of people who experience a stroke. Aphasia can impact all facets of language: speaking, understanding, reading and writing. Around 60% of people with aphasia have persistent language impairments 1 year after their stroke, requiring ongoing healthcare and support. In recent years, the internet has become a key resource for the self-management of chronic health conditions. Navigating web content, however, requires language use, and as such, people living with aphasia are more likely to be excluded from digital health and support services. Web Content Accessibility Guidelines exist; however, they do not fully address the unique and diverse needs of people with aphasia, and a significant proportion of websites (over 90%) do not fully adhere to them. This protocol paper describes the first two stages of the Bridging the Digital Divide project, which aims to codesign and develop (a) a web-browser extension to re-render webpages to an 'aphasia-friendly' (accessible) format, (b) training tools to help users and health professionals customise the web-browser extension and (c) guidelines for developing communication-accessible websites. METHODS AND ANALYSIS: The research will be conducted using experience-based codesign. In Stage 1a, focus groups will be held with (1) people with aphasia, (2) family members or significant others and (3) health professionals working with people with aphasia. Participants will be asked to share their experiences of accessing (or supporting a person with aphasia to access) healthcare, information and support services on the web. The nominal group technique (NGT) will be used to identify priorities for improving web accessibility for people with aphasia. Focus group data will be analysed using reflexive thematic analysis, and prioritisation data will be analysed using inductive qualitative content analysis. In Stage 1b, eight codesign workshops will be held with representatives of the three key stakeholder groups to iteratively codesign and develop a web-browser extension, training tools and guidelines to support web accessibility. </p>

Funding

This project is being funded by a Medical Research Future Fund Consumer- led Research grant (MRF2019367) and a University of Queensland Foundation Research Excellence Award (2022001684). SJW and KS receive funding from National Health and Medical Research Council Emerging Leadership grants.

History

Publication Date

2025-08-10

Journal

BMJ Open

Volume

15

Issue

8

Article Number

e099273

Pagination

11p.

Publisher

BMJ Publishing Group Ltd.

ISSN

2044-6055

Rights Statement

© Author(s) (or their employer(s)) 2025. Published by BMJ Group. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.

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