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A false promise of COVID-19 'big' health data? Health data integrity and the ethics and realities of Australia's health information management practice

journal contribution
posted on 02.02.2021, 03:08 by Kerin Robinson
© The Author(s) 2020. Context: Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals for reasons including the (thus far) unverifiable provenance of data. This commentary adopts a health information management lens to focus on aspects of data in one of the studies (investigating the use of hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19). The issues: Referencing the Australian context, the current article considers some of the study’s reported hospital administrative and coded data categories within the context of Australian hospitals’ health information management practices. It highlights potential risks associated with the collection and interpretation of ‘big’ health data. Implications: This article identifies pitfalls that confront researchers undertaking multi-country studies and the need to consider country-specific: (i) collected administrative data items; (ii) health information-related ethical, legal and management policy constraints on the use of confidential hospital records and derived data; and (iii) differences in health classification systems and versions used in the coding of diagnoses and related procedures, interventions and health behaviours. Conclusions: The article concludes that the inclusion of a qualified, senior Health Information Manager in research teams and on institutional Human Research Ethics Committees would help to prevent potential problems.

History

Publication Date

01/01/2021

Journal

Health Information Management Journal

Volume

50

Issue

1-2

Article Number

ARTN 1833358320941190

Pagination

4p. (pp9-12)

Publisher

SAGE

ISSN

1833-3583

Rights Statement

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