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A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research

journal contribution
posted on 2025-05-16, 07:00 authored by Jenny Aspling, Veronica Svard, Lincoln HumphreysLincoln Humphreys, Christine BigbyChristine Bigby, Carl TidemanCarl Tideman
Background: Active Support is a staff practice that aims to increase engagement of people with intellectual disabilities. This study seeks to: (1) identify the outcomes of staff using Active Support and how these are measured; (2) identify how the views of people with intellectual disabilities have been included in Active Support research. Method: A scoping review was conducted of peer-reviewed articles about Active Support published between 2009 and 2023. Results: Sixteen articles were identified. Outcomes included engagement, the quality of staff support, choice and challenging behaviour. Structured observations were the most frequently used measurement method. Only two studies explored people with intellectual disabilities' perspectives about Active Support. Conclusions: Consistent use of similar measures is a strength of Active Support research. Including perspectives of people with intellectual disabilities may provide insight into dimensions of support not been measured and assist in further developing these measures and Active Support practice.

Funding

This research was supported by two grants from Ersta Diakoni and Marie Cederschiold University.

History

Publication Date

2024-11-01

Journal

Journal of Applied Research in Intellectual Disabilities

Volume

37

Issue

6

Article Number

e13309

Pagination

14p.

Publisher

Wiley

ISSN

1360-2322

Rights Statement

© 2024 The Author(s). Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.