La Trobe
The temporalities of supported decision making by people with cognitive disability.pdf (522.61 kB)

The temporalities of supported decision making by people with cognitive disability

Download (522.61 kB)
journal contribution
posted on 13.10.2020 by Wiesel, Ilan, Elizabeth Smith, Christine Bigby, Then, Shih-Ning, Jacinta Douglas, Carney, Terry

In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities are supported to make decisions that reflect as much as possible their ‘will, preferences and rights’. In this paper we examine how geo- graphical thinking about temporalities might illuminate some of the legal, ethical and practical complexities of supported decision- making. The paper draws on qualitative data from interviews with people with intellectual disabilities or acquired brain injury, and those who support them in making decisions. We examine how temporal scales and boundaries shape the determination of deci- sion-making capacity; how decision-makers’ ‘will and preferences’ are interpreted by supporters; and how the labour of support for decision-making is organised. We argue that further geographical engagement with supported decision-making can help significantly advance this important disability rights agenda.

Funding

ARC Linkage Grant

History

School

  • School of Allied Health

Publication Date

03/10/2020

Journal

Social & Cultural Geography

Pagination

1-18

Publisher

Taylor and Francis

ISSN

1470-1197

Rights Statement

The Authors reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.

Exports

Logo branding

Exports