La Trobe
2017 Bigby et al, Delivering decision support AJSI .pdf (120.32 kB)

Delivering decision making support to people with cognitive disability - what has been learned from pilot programs in Australia from 2010 to 2015

Download (120.32 kB)
journal contribution
posted on 05.11.2020, 03:17 by Terry Carney, Shih-Ning Then, Ilan Wiesel, Christine Bigby, Jacinta Douglas, Elizabeth Smith
© 2017 The Authors. Australian Journal of Social Issues published by John Wiley & Sons Australia, Ltd on behalf of Australian Social Policy Association. : The UNCRPD has generated debate about supported decision making as a way to better enable people with cognitive disability to participate in decision making. In Australia, between 2010-2015, a series of projects have piloted various models of delivering decision making support. A critical review was conducted on the program documents and evaluations of these pilot projects. The pilots were small scale, conducted by both statutory and non-statutory bodies, and adopted similar designs centred on supporting a decision maker/supporter dyad. Primarily, participants were people with mild intellectual disability. Themes included: positive outcomes; uncertain boundaries of decision support; difficulty securing supporters; positive value of program staff and support to supporters; limited experience and low expectations; and varying value of written resources. The lack of depth and rigour of evaluations mean firm conclusions cannot be reached about program logics, costs or outcomes of the pilots. The pilots demonstrate feasibility of providing support for decision making rather than resolving issues involved in delivering support. They suggest that some form of authority may facilitate the role of decision supporters, help to engage others in a person's life, and integrate decision making support across all life domains.

History

Publication Date

01/01/2017

Journal

Australian Journal of Social Issues

Volume

52

Issue

3

Pagination

19p. (p. 222-240)

Publisher

Wiley

ISSN

1839-4655

Rights Statement

The Author reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.

Exports