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2017 Bigby Conundrums of supported living The experiences of people with intellectual disability.pdf (1.22 MB)

Conundrums of supported living: The experiences of people with intellectual disability

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journal contribution
posted on 11.11.2020, 02:02 by Christine Bigby, Emma Bould, Julie Beadle-Brown
© 2016 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. Background Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported living. By investigating service user experiences of supported living this study aimed to identify how the potential of supported living might be better realised. Method Thirty-four people with intellectual disability participated in 7 focus group interviews and 6 people in an individual interview. Data were analysed using grounded theory methods. Results Although participants experienced greater choice and control over their everyday lives, they did not feel they controlled the way support was provided and experienced restrictions on lifestyle associated with low income. Despite their use of community places and varied social connections to family, friends, and acquaintances, most experienced loneliness. Conclusions If the potential of supported living is to be realised, shortcomings of support arrangements must be addressed by, for example, greater consistency of support worker skills, consumer control over recruitment and rostering, and more skilled support to build friendships and manage difficult relationships.

Funding

This study was funded with assistance from a funding grant offered under the National Disability Research and Development Agenda, jointly implemented by disability representatives from Commonwealth, state, and territory governments. However, the information and views contained in this research are not intended as a statement of Australian Government or any jurisdictional policy and do not necessarily, or at all, reflect the views held by the Australian Government or jurisdictional government departments.

National Disability Research and Development Agenda

History

Publication Date

14/11/2016

Journal

Journal of Intellectual and Developmental Disability

Volume

42

Issue

4

Pagination

11p. (p. 309-319)

Publisher

Taylor and Francis

ISSN

1366-8250

Rights Statement

The Author reserves all moral rights over the deposited text and must be credited if any re-use occurs. Documents deposited in OPAL are the Open Access versions of outputs published elsewhere. Changes resulting from the publishing process may therefore not be reflected in this document. The final published version may be obtained via the publisher’s DOI. Please note that additional copyright and access restrictions may apply to the published version.

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